Recommended Reading
Not just for you
Learning medical terms can help you communicate better with your health care professional, it can make discussing your treatment quicker and easier for all.
How do you find the emotional words to describe the way in which endometriosis affects you?
Many members of the Scottish support groups have found the following books helpful in finding that emotional language. Many have found it helpful to have loved ones read these books, opening up honest discussions about their health and how it is manifesting itself within their relationships.
Endometriosis: The Experts Guide to treat, manage and live well with your symptoms. By Dr. Andrew Horne PHD FROCG
"One in ten women suffers with endometriosis. So why is there no definitive cure and why does it take an average of 8 years to diagnose? Endometriosis experts Professor Andrew Horne and Carol Pearson explain what Endometriosis is and provide vital information for women who suffer from the disease."
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Living with Endometriosis by Clair Dempsey PHD
A photovoice study conducted by Clair Dempsey at the Centre for Intelligent Healthcare, Coventry University.
A Free to use resource.
Click image to view.
The Doctor Will See You Now: Recognising and Treating Endometriosis. By Tamer Seckin
"This book gives hope to everyone connected to endometriosis. That includes every woman and young girl who has it, and the women and men in their lives - the mothers, fathers, husbands, children, and friends - who know something is wrong, but do not know what it is or what to do about it. This book is written at a level that everyone with ties to this disease can relate to and understand, but it is also for doctors with good intentions who lack the knowledge of how to diagnose or treat it."
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Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain. By Abby Norman
In Ask Me About My Uterus, Norman describes what it was like to have her pain dismissed, to be told it was all in her head, only to be taken seriously when she was accompanied by a boyfriend who confirmed that her sexual performance was, indeed, compromised.
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Newly Diagnosed
Endo Bonds have produced a digital booklet for people who are Newly Diagnosed.
It aims to provide a guide to all things you experience as a person with endometriosis. This is free to view online.
Click image to view
Period. is everything you need to know about periods. PERIOD. Period. is a book for everyone; children and adults, mums and dads, womb-owners and ex-womb-owners. Overflowing with practical tips and advice, from what a period actually is to who does and who doesn't have them, this inclusive book is a myth-busting must-read. There is no beating around the bush in this funny and informative book written and illustrated by Natalie Byrne, a London-based illustrator who uses her colourful work to promote intersectional feminism and tackle social issues such as sexual assault and mental health.
Surgical menopause is different. It can feel brutal. It involves removing a sizeable chunk of our endocrine system, and yet the majority of us are sent on our way after surgery with little more advice or information than: 'lift nothing heavier than a kettle of water for six week, and refrain from sex for the same duration'. Not Your Typical Menopause is a unique collection of narratives from women with lived experience of surgical menopause. Open, honest, and courageous. If a surgical menopause is looming for you, this book will help ensure you are better informed and better able to meet some of the unique challenges that will likely ensue. Because, when it comes to our health, forewarned is indeed forearmed, and knowledge is power.
