There are a lot of common misconceptions relating to endometriosis and treatments used for endometriosis. We want to clear them up, as medical professionals your response to patients should be well informed and factual.
Endometriosis is not an infection
Your patient may be concerned that they have 'caught' endometriosis, this is not the case. While there is no clear cause it is well known endometriosis is not a sexually transmitted disease or infection.
Endometriosis is not contagious
Your Patient may be concerned they will pass this on to other people. This could be through general contact or sexual contact. This is not the case.
Pregnancy does not cure endometriosis
A child should never be considered a cure. Creating another human life is not a treatment option.
Endometriosis is not cancer
A common initial concern for patients can be that it is a form of cancer, especially if high CA125 markers have led to their diagnosis.
A hysterectomy does not cure endometriosis
The complete removal of the womb can lead to elevation of symptoms in women with Adenomyosis. In women with endometriosis, if it is not all removed at the same time from other organs affected, there can be little to no change in symptoms or pain.
Surgery is not a cure
Surgery does not cure a person of endometriosis. No matter how many surgeries they have, it may not change their pain or symptoms.
Stages will not always relate to pain
The diagnostic Stage may not relate to how much pain a person experiences. People with stage I can have more serve pain than people with stage IV
Infertility is common
Most women will first discover there is a problem when they try to start a family. It is estimated that it can contribute up to 50% to infertility problems.
There is no cure
While there is no cure, the right medications and treatments can make things manageable.
20-25% of women are asymptomatic
Some women will have no recognisable symptoms and will only become aware when they try for a family or another condition flags it up.
Extract from Clair Dempsey's Photovoice Study
"Menstruation is a normal part of being a woman, and we are told that pain is too.
My menstruation had always affected my life since it started when I was 12 years old, with insanely painful cramps, heavy bleeding, nausea and diarrhoea, combined with emotionally charged PMS mood swings.
Being told your period pain is 'normal, and every woman deals with it - why can't you? You start to doubt yourself.
Maybe I imagine that this pain is worse than I think it is? Maybe it is all in my head? maybe I'm overreacting."